Knowing where to begin after a Duchenne diagnosis can be challenging, but it is important to know that you are not alone.

In this section you will find links to videos and information beyond this Duchenne and You site that you can go to for more information and support.


It is important to know that you are not alone and that there are others that understand the challenges that you are facing.

The following patient advocacy groups are here to help by offering information, guidance, and support.

    United Kingdom
  • Action Duchenne:
  • Duchenne Now:
  • Duchenne UK:
  • Muscular Dystrophy UK:
  • Pathfinders:
  • The Duchenne Family Support Group:
  • Ireland
  • Muscular Dystrophy Ireland:


Learn about the different stretches your physiotherapist may have recommended to do at home to help prevent the loss of flexibility that comes with Duchenne.

These videos are provided as examples only and are not intended to replace any advice given by your healthcare professional. The stretches demonstrated in the videos should only be carried out if deemed suitable by your healthcare professional.

Patient support materials

If you are a person with Duchenne or the parent or carer of a someone with Duchenne, why not contact your healthcare professional or your local patient advocacy group for more information on our range of patient support materials including comics and an App to help better manage Duchenne.

Duchenne and Me app

The Duchenne and Me app lets caregivers and patients track health and wellness data, store medical information, and set appointment and medication reminders. The Duchenne and Me app is developed and funded by PTC Therapeutics.

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