Resources

Knowing where to begin after a Duchenne diagnosis can be challenging, but it is important to know that you are not alone.

In this section you will find links to videos and information beyond this Duchenne and You site that you can go to for more information and support.

Support

It is important to know that you are not alone and that there are others that understand the challenges that you are facing.

The following patient advocacy groups are here to help by offering information, guidance, and support.

    United Kingdom
  • Action Duchenne: www.actionduchenne.org
  • Duchenne Now: www.duchennenow.org
  • Duchenne UK: www.duchenneuk.org
  • Muscular Dystrophy UK: www.musculardystrophyuk.org
  • Pathfinders: www.dmdpathfinders.org.uk
  • The Duchenne Family Support Group: www.dfsg.org.uk
  • Ireland
  • Muscular Dystrophy Ireland: www.mdi.ie

Videos

Learn about the different stretches your physiotherapist may have recommended to do at home to help prevent the loss of flexibility that comes with Duchenne.

These videos are provided as examples only and are not intended to replace any advice given by your healthcare professional. The stretches demonstrated in the videos should only be carried out if deemed suitable by your healthcare professional.

Patient support materials

If you are a person with Duchenne or the parent or carer of a someone with Duchenne, why not contact your healthcare professional or your local patient advocacy group for more information on our range of patient support materials including comics and an App to help better manage Duchenne.

Duchenne and Me app

The Duchenne and Me app lets caregivers and patients track health and wellness data, store medical information, and set appointment and medication reminders. The Duchenne and Me app is developed and funded by PTC Therapeutics.

download ios image google play image

Our Use of Cookies

In addition to cookies that are necessary to operate this website, we use optional cookies to provide website functionality and give you the best possible experience. We won't set optional cookies unless you enable them. For more detailed information see our Cookie Statement , which explains among others, how to set your cookie preferences and how to recall your consent.

Cookie Settings

Some cookies are essential, others help us improve your experience by providing insights into how the website is used. Select one or more of the cookie types listed below, and then save your preferences. Refer to our Cookie Statement for more information.

Strictly Necessary cookies
Strictly necessary cookies enable core functionality such as security, network management, and accessibility.

I accept the advertising/targeting cookies
Advertising/targeting cookies, which we use to track user activity and sessions so that we can deliver a more personalized service, and (in the case of advertising cookies) which are set by the third parties with whom we execute advertising campaigns and allow us to provide advertisements relevant to you.